Storm Jacobs is a 15-year-old Klipfontein resident who has been living with Duchene muscular disorder since he was just six.
His mother, Karina Jacobs, told TotT the story of her son and daily struggles.
He was born a normal, healthy boy, but at five years old his mother noticed that he started walking strangely, and then when he turned six he started crawling and couldn’t walk at all.
“We went to Provincial Hospital in Port Elizabeth and they ran some tests and sent them to Cape Town. They came back stating that he is suffering from Duchene muscular disorder. Now he can’t walk at all,” Karina said.
“He was using a wheelchair but it didn’t have the neck support, because he can’t sit up by himself because his muscles are getting weaker by the day. Even now in order for him to sit up straight we had to put cushions around him. We need a wheelchair that can support his neck and those are very expensive,” she said.
A family friend, Eugene Williams, who decided to be a Good Samaritan and do something for the family, wants to put on a charity gospel show to raise funds for Storm. It will be held in Port Alfred in around April – more details will be revealed closer to the time.
“I want to help him because I don’t think it is nice to be in bed all the time even when you don’t even feel like it,” Williams said. “I want all the ticket sales to go to Storm. And anyone who would like to donate money please do so because his family cannot afford the kind of wheelchair he needs. All I can confirm for now about the gospel show is that we even have artists from Cape Town, and we are hoping to do it in Jauka Hall.
“The boy has been out of school for almost ten years now, he left school when he was in Grade 2 because he couldn’t cope the kids at his school – they used to tease him all the time and it hurts his feelings,” said Williams.
Anyone who can help in any way can contact Eugene on 062-457-4660. He said the family would appreciate any type of help, including adult nappies.
BY NTOMBENTSHA MSUTU